We Are Compassionate community

The Piliyandala Plan

The uniqueness of the Piliyandala Plan is based on the fact that it arose out of a series of interventions in the community by a group of residents, where in, Action preceded the Plan. It is also significant that it arose from the grass roots to connect up with the national organisation rather than follow the usual top down approach. This community project was initiated by a group of like-minded, multidisciplinary, multi-sectoral residents, who identified the unmet need for palliative care in Piliyndala. We have realized the need for ownership of the Pliyandala Plan by all segments of the community in Piliyandala. Therefore our role will be one of facilitation. Our approach would be to follow the direction of other community groups in the area and to respond to their palliative care needs. From the work done so far we have identified four groups of stake holders in the community. These stakeholders have also been identified in other parts of the world. They are -
  • a) Compassionate community
  • b) Coping Carers
  • c) Patient Partners
  • d) The Authorities

Compassionate community

The concept of a compassionate community is not new and it has given rise to a world-wide movement. Like all community movements it is, for the community, by the community and of the community. It asserts that the community has resources which can be used to care for itself. Community is comprised of Neighbors, religious organizations, schools, service providers such as Sarvodaya, Lions, Rotarians etc., business communities, commercial establishments village committees, pensioner’s associations, sports clubs, prisons and hospitals. In our work we have experienced the coming together of neighbors around patients and their families. Compassion is key. Patients who are dying slowly need enormous psychological support. We have discovered a culture of denial that creates a barrier between the patient and virtually the rest of the universe. Crucial emotional support is hard to provide to the patient in this loneliest time when life is coming to an end.

Coping Carers

Family, volunteer and primary carers, who provide care in the community also suffer. They too deserve the attention of the compassionate community. The main objective of The Compassionate Community Piliyandala. Compassionate Community Piliyandala has been to facilitate End of life home care. Principally to make dying more dignified and tolerable for the patient but also to relieve the strain and burden of care giving on the carers. What we are realizing in very real terms is that death is certainly not the end of palliative care. Bereavement continues. Those who are left behind are devastated and sometimes made destitute. Our work will have to go on.

Patient Partners

This is perhaps a relatively newer approach. Patients with a life threatening disease see themselves or are seen by others as if they are on death row. That is not the full picture. There is life before death. As the saying goes they too have “many promises to keep and many miles to go”. Patients can be uplifted and engaged by coaching to become partners in their care. Sometimes patients themselves can become coaches for other patients and even for carers. This component needs more work in Piliyandala.

The Authorities

Local government officials, state and private health professionals undoubtedly play a crucial role in the provision of palliative care in the community. The Piliyandala Branch is gradually building partnerships with them. In conclusion the activities of the Compassionate Community Piliyandala will be focused on mobilizing the compassionate community, empowering coping carers, uplifting patients to become partners in their care and working with the authorities.
299/2 Swarnapaya Watta Road, Madapatha Road, Kolamunna, Piliyandala
E-mail: ccpiliyandala@gmail.com Phone: 0766686777